Written Declaration 26 on IPF is adopted!

The European Idiopathic Pulmonary Fibrosis and related disorders federation (EU-IPFF) has promoted the Written Declaration […]

Status of the Written Declaration on IPF

Status of the Written Declaration on IPF: the official count is now at 111 signatures […]

16 Members of the European Parliament presented a written declaration

On 11 April 2016, 16 Members of the European Parliament from 9 EU Member States […]

IPF as a rare disease. The Italian Parliament voted

The Italian Parliament voted the motion that recognises Idiopathic Pulmonary Fibrosis (IPF) as a rare […]

Forthcoming review of the Italian National Plan for Rare Diseases

ITALY, April 2016 – After the success of the presentation of the European IPF Patient […]

IPF patients and experts at Italian Parliament

Rome, 2016 March 1st. A key event promoted by AMA Fuori Dal Buio has […]

Patient Groups join together to form a Federation dedicated to IPF

Patient Groups join together to form a Federation dedicated to Idiopathic Pulmonary Fibrosis & Related […]

The IPF Patient Charter in Rome

March, 1st 2016, the IPF Patient Charter in Rome. “Idiopathic Pulmonary Fibrosis patients’ right to […]

ERS Journal publishes an article on the European IPF Patient Charter

Healthcare professionals and IPF Patient organisations work hand-in-hand to shed light on the inequalities and […]

Giving a future to patients living with rare pulmonary diseases

IPF Groups organise the second European Parliament Roundtable entitled “Breath of Hope: Giving a future […]