ITALY, April 2016 – After the success of the presentation of the European IPF Patient Charter to the national political decision-makers, we have achieved an important result: the motion presented by Mr. Pierpaolo Vargiu (photo), Member of the Chamber, has been approved unanimously in the Italian National Low Chamber.

PierpaoloVargiuThis will lead to the inclusion of IPF in the forthcoming review of the Italian National Plan for Rare Diseases, ending in 2016. AMA Fuori dal Buio thanks for this achievement all the people who contributed to the realization and the promotion of the European IPF Patient Charter, especially the European Patients’ Associations that are member of the EU-IPF Federation and that have been raising awareness among stakeholders and political decision-makers for years.