This year’s IPF world week will take place 28 September – 5 October 2014

The Idiopathic Pulmonary Fibrosis Week was created in 2012 as an initiative to inform people around the globe that Idiopathic Pulmonary Fibrosis (IPF) is a rare and poorly understood chronic and ultimately fatal lung disease. Each year, around 35,000 people in Europe are newly diagnosed with IPF, with this number likely to increase in the future.

Each year during one week, Idiopathic Pulmonary Fibrosis patient associations across the world join together to drive action for greater awareness of IPF, call for better access to care, and bring hope to those living with the condition.

Visit IPF website and discover the contest

IPF World Week unites IPF patient associations, the medical community, and industry to fight this rare disease and drives national and international action to:

  • Raise awareness of IPF amongst the general public, healthcare professionals and policy makers
  • Educate the public about IPF risk factors such as smoking
  • Support and promote a holistic approach to standardize IPF management across Europe
  • Improve knowledge on the latest available treatment and care
  • Offer support and tools to patients and their families to cope better with this disease in their daily lives
  • IPF World Week is now in its third year and we hope to encourage even more people from all backgrounds and countries to campaign for this cause.

The core idea

The main objective of this initiative is to build a stronger voice on IPF and educate the public as well as healthcare professionals about IPF under one common core idea: “Breath of Hope”.

“Breath of Hope” symbolises how important breathing is for patients whose lungs are fibrotic and have trouble getting fresh air. “Breath of Hope” conveys the need for new and better treatment options now and in the future to ensure patient suffering from IPF have a good quality of life. Ultimately, Breath of Hope will convey empathy for people with IPF and support the need to better control and eventually find a cure for the condition.

Campaign messages

Idiopathic Pulmonary Fibrosis (IPF) is a chronic, progressive, unpredictable and ultimately fatal lung disease.
Currently, between 80,000 and 111,000 people are living with IPF in Europe.
IPF typically occurs in patients over the age of 45, and is more common in men than in women. Although the cause is unknown, people`s risk increases with exposure to risk factors such as smoking, infections, family history and environmental factors (exposure to metal and wood dusts, farming, raising birds, etc.). Often, symptomatic patients suffer from non-productive cough, dry, inspiratory bibasilar “Velcro®-like” crackles and/or clubbing of fingers.
People and healthcare professionals need to be aware about this chronic rare condition in order to diagnose and treat at an early stage.

Theme 2014

The theme to raise awareness on IPF is “Blowing soap bubbles”.

Blowing soap bubbles is a joyful activity. When you are healthy, it takes less than a second to blow bubbles. If you are a patient with IPF, this simple activity can be very challenging. The Breath of Hope Campaign aims to raise awareness of IPF while reminding about the importance of lung fitness/health.

Blowing soap bubbles can be done alone or in a group/with your family/with your doctor/with your pet – one can blow big or small bubbles; one can blow them from a special location or while doing an activity.

Some initial ideas for the photo contest:

Get some members of your organization together, wearing the organisation’s branded t-shirts and blow bubbles
Form the letters of IPF with people on a piece of grass while blowing bubbles
Get a family generation together (grandparents, parents, children) and blow different sizes of bubbles
There are two ways to portray “blowing soap bubbles”, namely by submitting photos or creating a short video story. Details for the submission of either contest are explained here.

The 2014 contest

“Blowing soap bubbles”: The photo contest

What is the photo contest all about?
On behalf of Idiopathic Pulmonary Fibrosis patient associations across the world, we would like to repeat the idea to run a photo contest. The aim is to submit an image that represents at its best the theme 2014 “blowing soap bubbles”.

Why should you participate?
First of all, the winning image will be used as key image across all the 2014 IPF World Week campaign materials.

Secondly, the author/photographer of the winning image will be rewarded with a prize of 1000 Euros for his/her IPF charity of choice. The award will be handed out at a specific event, taking place during IPF World Week.

Who can participate?
Registration is open to everyone of any level of capability, experience or country of origin. Both professional and amateur photographers alike are encouraged to submit photos.

How can you participate?
The photo needs to visualize a portrait of a subject blowing soap bubbles. A maximum of three photos per submission is allowed. You need to submit your images via the IPF World Week website or send it to contest@ipfworld.org

What are the technical requirements?
The photo must be submitted in colour, with a minimum size 200 mm x 300 mm and a resolution of 300 dpi/inch.

When do you submit your images?
Photo entrees must be submitted no later than June 9, 2014 and sent to the following email address: contest@ipfworld.org

“Blowing soap bubbles”: The video contest

What is the video contest all about?
On behalf of Idiopathic Pulmonary Fibrosis patient associations across the world, we would like to repeat the idea to run a video contest. The aim is to submit a video story that represents at its best the theme 2014 “blowing soap bubbles”. The video should tell a story around IPF using soap bubbles as a teaser. The video story can touch on things like the life of an IPF patient/his or her family, IPF challenges, diagnosis, treatment etc.

Why should you participate?
First of all, the winning video story will help to raise awareness about IPF. With the video, you will be given the opportunity to convey your personal massage for IPF.

Secondly, the winning contestant will be rewarded with a prize of 1000 Euros for his/her IPF charity of choice. The award will be handed out at a specific event, taking place during IPF World Week.

Who can participate?
Registration is open to everyone of any level of capability, experience or country of origin. Both professional and amateur videographers alike are encouraged to submit photos.

How can you participate?
The video must explain a story related to the theme “Breath of Hope” while portraying one individual or more blowing soap bubbles. The video should be maximum 1-2 minutes long. It must contain your own or your group’s original work – including music, sound effects, photography. Please provide if possible a short summary in English about the story you want to tell.

You need to submit your video via the IPF World Week website or send it to contest@ipfworld.org
The video story can also be submitted to contest@ipfworld.org by using the website https://www.wetransfer.com/

What are the technical requirements?
Your video should be submitted as an MP4 or other supported formats: avi, mov, mpeg, mpg, or wmv. The recommended screen resolution is 640×480.

When do you submit your video story?
You need to submit your video via the IPF World Week website or send it to contest@ipfworld.org by June 29, 2014. The video story can also be submitted to contest@ipfworld.org by using the website https://www.wetransfer.com/

Selection Procedure
Who will choose the winner?

Patient associations participating to the ipfworld.org website will vote the winning photo and video.
When will the voting process be completed?
The voting process will be closed by July 15th, 2014. The winner will be informed via email.

Legal requirements
What are the legal requirements to participate?
Complete a registration form (available hereas well as in annex)

All entrees must be submitted together with a registration form duly completed that allows www.ipfworld.org and its affiliates to use the submitted competition entrees as part of its disease awareness raising activities. Details of permissions and licenses granted are featured on the reverse of the registration form. By signing the registration form, participants are agreeing to all the terms and conditions stipulated. If there are any questions, please send an email to contest@ipfworld.org
Personal release form (available hereas well as in annex)
All subjects either photographed or filmed must sign a personal release form, which grants www.ipfworld.org permission to use and reproduce their image. A personal release form is contained in the registration pack. For any subjects below the age of majority, the legal parent or guardian must sign the personal release form on their behalf. If there are any questions, please send an email to contest@ipfworld.org

Contacts of secretariat

IPF World Week secretariat:
Rosalba Mele
AMA Fuori Dal Buio
Via del Pozzo, 72
41100 Modena, Italy

Email: contest@ipfworld.org
Weber Shandwick Geneva
Daniela Negri / Virginia Hasenmeyer
Passage Malbuisson 15
1204 Geneva, Switzerland
wswintermune@corp.ipgnetwork.com