ipf-eu-patient-logo

European Idiopathic Pulmonary Fibrosis (IPF) Patient Charter

Idiopathic Pulmonary Fibrosis (IPF) is a chronic and ultimately fatal lung disease, the cause of which is still unknown

European IPF Patient Organisations call for patients and their families to have consistent and fair rights to:

1) Early and accurate diagnosis
2) Equal access to care
3) A holistic approach to standardise IPF management
4) Comprehensive and high quality information about the condition
5) Better access to palliative care and end-of-life care

>> Read More

The European IPF Patient Charter calls for greater awareness of IPF and for better access to care in European countries. The Charter lays down recommendations that, if adopted, would ensure improvements in IPF patients’ quality of life, whilst supporting efforts to find a cure.

There are currently between 80,000 and 111,000 (1) people are living with Idiopathic Pulmonary Fibrosis in Europe. This fatal condition has been around for decades, yet there is no cure and only limited treatment available. IPF often develops rapidly and many patients are given a survival time of just two to five years. Each year around 35,000 people in Europe are newly diagnosed with IPF, with this number likely to increase in the future.

sign-up

Sign the European IPF Charter
You can make a difference!

SIGN THE CHARTER NOW!

Name (required)

Surname (required)

Nationality (required)

Country (required)

Your Email

I've read and agree with the terms of use and the privacy policy.

We hate spammers, so please prove you are NOT a robot by solving this:



European IPF Patient Organisations call for patients and their families to have consistent and fair rights to:

1) Early and accurate diagnosis

by raising awareness of IPF and recognising IPF as a chronic condition. > Read more

2) Equal access to care

including medication and transplantation irrespective of age, by coordinating timely and efficient drug approvals at a national level and revising the eligibility criteria for lung transplantation. >> Read more

3) A holistic approach to standardise IPF management

by involving all aspects of support from early diagnosis to treatment and rehabilitation including correct referral, access to multidisciplinary teams, lung transplantation, emotional support, ambulatory and domiciliary oxygen services. >> Read more

4) Comprehensive and high quality information about the condition

including its treatment, transplant information and emotional care for both patients and families. >> Read more

5) Better access to palliative care and end-of-life care

with support for both patients and families. >> Read more

35,000

Our Goal: 35,000 signatures

16,902

Up to Now

Last update: 02/01/2017

JOIN US IN MAKING THESE RECOMMENDATIONS BECOME A REALITY

The Charter has been endorsed by experts physicians and nurse actively involved in the management and treatment of IPF. We aim to gather 35,000 signatures to represent the number of new cases diagnosed every year in Europe. You can make a difference!

logo_ipf_big

SIGN THE CHARTER NOW!

Name (required)

Surname (required)

Nationality (required)

Country (required)

Your Email

I've read and agree with the terms of use and the privacy policy.

We hate spammers, so please prove you are NOT a robot by solving this:




Members