March, 1st 2016, the IPF Patient Charter in Rome. “Idiopathic Pulmonary Fibrosis patients’ right to be diagnosed and to access treatment”
 
On March, 1st 2016, a key event promoted by AMA Fuori Dal Buio will take place, at 10.30 a.m. at the Chamber of Deputies – Sala del Refettorio (Palazzo San Macuto – Via del Seminario, 76 – Rome): “Idiopathic Pulmonary Fibrosis patients’ right to be diagnosed and to access treatment. The European IPF Charter and the importance to recognize IPF as a rare disease in all Italian regions to overcome differences in treatment”.

Idiopathic Pulmonary Fibrosis (IPF) is a chronic, progressive and rapidly fatal lung disease. In Italy its incidence is estimated to be between 30 and 40 people per 100.000 inhabitants, but diagnoses are significantly less, since the disease is still scarcely known and often underestimated.

The conference aims at discussing the key points of the European IPF Charter. It is also intended to begin a dialogue with the political decision-makers on possible actions to overcome regional differences, as IPF is currently recognized as a rare disease only in Piedmont and Tuscany.

Sign the charter